The Australian government has announced a national Senate Inquiry into epilepsy - a significant opportunity to strengthen understanding, policy and systems of support for people living with epilepsy.
The Inquiry will examine the current landscape of epilepsy care and identify where improvements are needed across health, education, research and community support.
Epilepsy affects over 250,000 Australians, yet many people continue to experience:
This Inquiry provides a structured pathway to bring these issues forward and contribute to meaningful, system-level improvement.
The strength of this Inquiry will depend on the breadth and depth of contributions received.
Submissions are welcomed from:
Sharing lived experience, professional insight, or practical recommendations helps build a clearer picture of what is working and where change is needed.
You can provide a written submission directly to the Inquiry.
Submissions close 15 May 2026.
Submit via the official Inquiry page: Australian parliament website.
To support clear and effective contributions, we have developed a series of practical templates to help people structure their submissions, align to the Inquiry’s Terms of Reference and provide practical recommendations.
If you are unsure where to start, the individual template is a good place to begin.
These resources are intended to support a range of contributors, including individuals and families, clinicians and health professionals, organisations and advocacy groups and those wishing to contribute specifically on SUDEP.
Submissions do not need to be long or technical. The most helpful submissions are:
Even a short submission can make a meaningful contribution.
A dedicated webinar series is available to help guide you through the submission process and provide context on key issues.
The following videos have been developed by Epilepsy Tasmania. We thank them for their leadership in supporting the epilepsy community to engage with the Senate Inquiry.
Epilepsy ACT is working with individuals, clinicians and organisations to support meaningful contributions to the Inquiry.
Contact us if you would like guidance, have questions or are considering a submission.
Our focus is to support a thoughtful, coordinated contribution to the Inquiry by:
This Inquiry represents an important opportunity to inform future policy and improve outcomes for people living with epilepsy across Australia.
Contributions of all kinds - large or small - are valuable in helping shape that future.
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