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HELPLINE 1300 852 853

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NATIONAL EPILEPSY SUPPORT SERVICE 1300 761 487

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OFFICE 02 6287 4555

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Connections

National partners

  1. Epilepsy Australia Ltd

    The national coalition of Australian Epilepsy Associations raising our voices as one to advance the cause of all Australians living with epilepsy.

  2. The Epilepsy Centre

    South Australia & Northern Territory

  3. Epilepsy Tasmania
  4. Epilepsy Association of Western Australia
  5. Epilepsy Foundation

    Victoria & NSW

  6. Epilepsy Queensland
  7. Epilepsy Smart Australia

    We are a national partnership working together to bring you the best knowledge and resources about the management of epilepsy. There’s help for people with epilepsy, those who support them, and for broader community organisations and companies.

Children and young people

  1. Cheeky Neurons
    Nix and Nellie are cheeky, curious young neurons who want to understand the brain – especially what’s happening in the brain in epilepsy. This website aims to help children and families understand epilepsy in a fun and engaging way and hopes to reduce the stigma and anxiety that is often associated with the experience of epilepsy
  2. Little Poss
    Epilepsy Queensland’s website for children with epilepsy
  3. Livewire
    Livewire.org.au is a free online community connecting teens living with illness or disability, and their siblings, within Australia and New Zealand. Whether you’re home or in hospital, you can make friends, share stories, laugh, have a vent, and be yourself. Livewire offers a safe online space where members can connect and share experiences with others who understand what they are going through
  4. YEAH – online space for young adults
    YEAH – the International Bureau for Epilepsy (IBE) online space for young adults under the age of 30 years to meet and chat with others – sees an increasing membership. You can follow YEAH on Facebook and there is a closed group for member discussions
  5. Mindmap
    Mindmap is a new website portal that was launched in October 2022 to better help children, young people and parents navigate their way to find the most suitable mental health support and services available to them across the ACT
  6. Abilities Unlimited Australia
    AUA offers targeted, inclusive programs in the ACT region, providing children of all abilities the transformative power and joy of sport and active recreation

Research and treatment

  1. Epilepsy in Australia
    Epilepsy is one of the most common and disabling chronic neurological conditions. It is characterised by recurrent seizures, which are caused by a temporary disruption of the electrical activity in the brain. This web report provides an overview of epilepsy in Australia, including statistics on disease prevalence, burden, treatment access, hospitalisations and deaths.
  2. Epilepsy Research Centre
    Located at the Melbourne Brain Centre in Heidelberg, the Epilepsy Research Centre is a large cohesive group within the Department of Medicine at the Austin Health campus of The University of Melbourne.
    They conduct clinical and molecular genetic studies by studying individuals and families with a history of seizures using cutting edge research methods and technologies.
  3. Epilepsy Society of Australia
    The Epilepsy Society of Australia is a professional organisation for clinicians, scientists and technologists involved in the diagnosis, treatment and research of epilepsy in Australia.
  4. Genetic Epilepsy Team Australia
    GETA:GET A Team, GET A Target, GET A Cure. Australia is the global leader in the field of genetic epilepsy discovery. Australian researchers were the first in the world to show that epilepsy can be caused by genetic factors – whether through random mutations or inherited characteristics. Click to read more.
  5. The Royal Children’s Hospital, Melbourne
  6. Children’s Hospital, Westmead
  7. Sydney Children’s Hospital Randwick

Other links of interest

  1. Disability ACT – Community Services
  2. National Disability Services
  3. National Disability Insurance Scheme
  4. NDIS Quality and Safeguards Commission: Practice Alert
  5. National Relay Service
    For people who are deaf, or have speech or hearing impairments.

International sites

  1. About Kids Health (Epilepsy Resource Centre) – Canada
  2. Epilepsy Action – UK
  3. Epilepsy Foundation – USA
  4. Epilepsy Ireland
  5. Epilepsy New Zealand
  6. Epilepsy Society – UK
  7. International League Against Epilepsy – USA
  8. Intractable Childhood Epilepsy Alliance: ICE – USA
  9. LGS Foundation (Lennox- Gastaut Syndrome) – USA
  10. Non-Epileptic Attack Disorder – UK
  11. Purple Day – USA
  12. SUDEP Action: making every epilepsy death count – UK
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Donate

Please donate! Any amount, any time. We are completely dependent on your support to keep on helping people in the ACT.

Help!
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National helpline

1300 852 853

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Location

Grant Cameron Community Centre
Level 1B, 27 Mulley Street
Holder ACT 2611

Postal Address:
PO Box 3744
Weston Creek ACT 2611

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Opening times

Mon to Thurs: 9am to 4pm
Fri: Closed
Sat & Sun: Closed

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